Friday, January 13, 2012

{Somebody} is definitely NOT happy.


Who is deep in thought about her upcoming sleep study.

Which may lead to a major open her breathing path.

We *think* she had obstructive sleep apnea.

If this is the case, she will have procedure called: mid-face expansion.  A polite way of saying that her upper jaw will be broken and moved forward.

For a while.

A long while.

Shea simply doesn't sleep well.

Like years!   For real.

We need this precious little girl to get her sleep!

(and me, too)

So, her anger.

Her fear.

Her frustration.

All really stems to the fact that my darling child was born with a pretty severe cleft palate and lip.

She doesn't understand why.

She doesn't like looking a little different.

She is old enough to realize that surgery IS.NOT.FUN.

Obviously she doesn't 'see' the big picture.

Someday she will.

She says she doesn't want all those stickers and electrodes on her head.

And the wires, well that is just plain annoying.

But, in her most vulnerable moments....

She asks if {this} is the reason.

The reason her China mama couldn't keep her.

Be still my heart.


  1. My thoughts are with you all during this time and that you get the answers you need.

  2. HI Chris, I follow your blog and could you please email me privately? I'd share our daughter's story w/ you. Thanks.

  3. Bless her heart, sweet, precious girl. Bless your heart too, Mama. Hugs.